K
KathyC
Guest
For those of you following my troubles with DH health here is the latest: MRI of spine shows numerous tumors or something growing on the spine, bone scan confirms problems in the spine, CT of pelvis/spine shows problem has spread from spine to lymph nodes in the pelvic area. Initially dr thought prostate cancer had moved to the spine but biopsy said no prostate cancer. Unable to locate the primary source for what they said was cancer on the spine they did the bone biopsy on the spine last wk & today's path report says there is no cancer in the spine. I said well I guess that is good news that there is no cancer in the spine then the nurse qualified it by saying at least not in the area that was biopsied (I assumed that if you had ANY bone cancer that it would show up in the bone marrow biopsy). I asked about the lymph nodes & she said yes, dr does believe it is cancer however, he just can't locate it & whatever is growing along DH spine it is affecting his ability to move. We have been referred to an oncologist/hematologist who is supposed to be the best in the area however we have to wait til Nov 6th to get in!!! We are so frustrated--frightened--confused. Our dr has ordered soooo many tests/lab work, etc & still believes that it is cancer but just doesn't know what to do. Our dr admits that he too is frustrated & baffled as he knows we have a very very serious problem & he can't figure it out. He has been conferring with other drs along the way so guess we wait til Nov to see what the oncologist has to say but I'm beginning to think we may be headed to the Mayo Clinic. This whole mess started way back the 1st wk of July while at a convention in Chicago. DH has had literally thousands & thousands of $$$ in tests for 4 mo now which confirm he is seriously ill--just nobody can figure out what he has. At any rate we have had enough stress for a while so Fri we are headed to Branson, Mo for some relaxation--have tickets for the scenic train ride & DH wants to try to get thru the Titanic Museum and then we will come home to wait for our next appointment. I feel like we are living in some kind of a soap opera. Thanks for your support--more updates when I know something.