Had visit with new spine dr today. First thing he said was that it isn't very often that they see a patient with so many serious medical issues & on top of that his spine looks really really weird. After an hr+ exam he said he was very concerned with Mike's extreme muscle weakness. Wanted to know why he walks the way he does. I said that is why we 1st went to an ortho dr yrs ago because we thought it was bad knees & from there it went to a look at the spine & all the tests for cancer until he finally developed lymphoma & nobody has ever questioned his walk since.
Dr says his difficulty with walking, great difficulty keeping his balance, & the muscle weakness especially in his legs & some in his arms has nothing to do with the deterioration in the spine. Dr says he needs to be tested for muscle diseases in the muscular dystrophy family. Says "if" it is 1 of these diseases that there is no cure but he would begin a much more aggressive physical therapy program than what he is on now.
Literally just walked in the door from Iowa City when the neurology depart called to schedule tests. First test is set for April 7th so until then we just sit & wait & wonder if we have a new obstacle to overcome. Certainly wasn't the kind of day we expected.
Dr says his difficulty with walking, great difficulty keeping his balance, & the muscle weakness especially in his legs & some in his arms has nothing to do with the deterioration in the spine. Dr says he needs to be tested for muscle diseases in the muscular dystrophy family. Says "if" it is 1 of these diseases that there is no cure but he would begin a much more aggressive physical therapy program than what he is on now.
Literally just walked in the door from Iowa City when the neurology depart called to schedule tests. First test is set for April 7th so until then we just sit & wait & wonder if we have a new obstacle to overcome. Certainly wasn't the kind of day we expected.
