update/DH worst news

K

KathyC

Guest
An update to my post of last wk ref DH health problems. After 3 mo of testing it looks like we have an answer. He has numerous tumors along his spine (he can barely get up & down & has great difficulty walking); more tests tomorrow & then a bone biopsy. At this point they're looking for cancer elsewhere to see how it spread to spine & appear to be focusing on prostate. Have so many questions with so few answers; this man is 58 yr old & goes to his internist every 6 mo, goes to his urologist once a yr FOR PROSTATE screening, goes to gastroenterologist once a yr for follow up on life long Crohn's disease--if this is prostate cancer how did it get missed til it has spread to the spine? Problems originally started in early July while in Chicago but those symptoms all pointed to heart issues; only constant symptom he has had for well over a yr has been difficulty walking--saw physician assistant a yr ago at orthopaedic office who x-rayed knees & said they were in good shape & sent him home. Since then we've been treating it as arthritis; went back to orthopaedic office last wk but refused to see the PA and insisted on a dr--took us 3 wks to get in. Dr said as soon as he saw DH walk he knew it was not knee related. I feel like I shouldn't be complaining to you because I know that I'm not the only 1 that this is happening to. I know many of you are currently going thru something similar or have already gone thru this but I'm hurt--I'm angry that this could happen to somebody that goes to all of his checkups. I am devasted--he has been at my side for over 33 yrs & I fear that this is very advanced. Thank you for listening.
 
T

TexasSue

Guest
Kathy - my heart goes out to you. Many thoughts and prayers going your way.
 
R

reggae

Guest
Kathy, please know that your husband is immediately in my prayers, as are you and your family at this stressful time.

Sure wish there was a way this could be simple, but now you have to be strong and try to do all that you can to get his treatments.

So many times these things go undiagnosed, and how do we understand that? We are not health professionals, and we put our trust in them. what else can we do?

I do understand your fustration...the not knowing...it is so very difficult.

Please know this, we are here for you, anytime you want to talk, please email me. My email address is in my profile.

May God bless...
 
C

connie seabee

Guest
Kathy, I can only imagine how shocked and devestated you must feel right now. Lets hope and pray the biopsy come out good. I'll be thinking of you and your hubby. Prayers and good wishes are on the way.
 
D

Donna - dsw

Guest
Kathy - hang in there and you have every right to be upset - you go ahead and vent to everyone and anyone!

Hope you get some good news soon.
 
G

GloBug

Guest
Kathy, I don't blame you for being angry and scared. Medical people often look at the most logical thing to be causing a problem... it's the IF IT LOOKS LIKE A HORSE, IT MUST BE A HORSE... but sometimes, it's something other than a horse.

One thing I learned during my pregnancy is that you have to be responsible and agressive for your own health. You and your DH will remain in my prayers.
 
K

korinalacount

Guest
Kathy my heart goes out to you,you are a very strong woman and will be there for your husband,my prayers are winging your way immediately.
 
J

JANPEP

Guest
Oh Kathy, I'am so sorry to hear such news. I don't blame you for being angry, I would be too. It seem's the medical people just don't get it these day's.
My prayer's go out for your husband & also you.
 
B

Beryl

Guest
I am so sorry Kathy that you are having to face this. I can only imagine your anger, your hurt and your fear. You are entitled to feel all of these things. Your husband is in my prayers (as are you).
 
M

MARIPOSA

Guest
What a shock for you both Kathy. This is going to be a very tough battle to fight, but at least now you have a better idea of what you are up against. I think the hardest part is that you probably lean on your hubby for emotional support and now you find yourself in the position of needing to be the strong one. Well, we will all be your personal support group and you know by now that God has provided this very compassionate group of cyberbuddies to be just that. And here I thought that I came to C@ 5 years ago mainly for cruise info. LOL what a wonderful surprise was in store for me and what a blessing you all have been.

I would suggest that if you haven't done so already, you sign up for AOLs AIM chat program, it's absolutely free. Get some buddies to sign up along with you and then WHENEVER you need to 'talk' you will see who is available to be there for you when you need them the most. This is what helped me the very most when I was the most discouraged. Get Hucc to put you on his buddy list, he's one of the best possible buddies online. Count me in as well. Of course you could use C@ chat as well.

FYI, after my chemo I found out that I had a brand new 'complication' of diabetes. Seems when our bodies go through any kind of trauma we are very susceptible to this illness so be sure to have his primary care doctor monitor his glucose levels often. The info is right there in all those lab tests that they keep doing, if you just look for that specific info. I probably would have caught it sooner if I had only been aware of my high risk for it and known that I could read the lab tests myself.My doctors were focused on the cancer, not my sugar levels.

Which brings me to another very important FYI. And this goes for anyone going through any kind of chronic (ongoing) medical issue: If you haven't done so, please request complete copies of all lab/test/surgery results ever done and keep those in a special notebook. Many times one of my doctors has requested copies of something, or asked me specific questions related to them and it was so much easier when I could just hand them a copy instead of having them request it from medical records, which can take ages to obtain.

I would also keep on an Excel chart a detailed updated history/list of all meds, including date started, dosage, prescription #, pharmacy, doctor, side effects experienced, and discontinue date. very important info.

At the bottom of my list are the current meds/dosage being taken so that whenever I go in for any kind of appt I just print out the update & hand them a copy of that portion to keep. Keep a copy in your purse at all times as well.

You know don't you Kathy, that when we offer prayers for our C@ buddies that we have to begin a prayer list and keep it handy by our computers to refer to daily, and to update as needed. Your request has been updated my dear and you have my continued prayers.

Hugs and more prayers, Mari
 
R

r8derfan

Guest
Oh Kathy my heart goes out to you. I am so sorry to hear this news. (((Hug))) Heartfelt prayers for your husband and you.
 
C

conniecat

Guest
So sorry to hear this. It is not the news we hoped for, naturally. Well, one step at a time, don't let worry make you sick too. Hugs, cc
 
S

seagrandaddy&seagrandma

Guest
Our thoughts and prayers go out to you both. Stay strong for each other.
 
M

mrsrocster

Guest
Oh Kathy, this certainly is not what we were expecting to say the least.

I could not add anything to what the others have said, especially Mariposa's words.

I cannot imagine what you and your family are going through, but as others have said, please know we are here for you online and will continue prayers for as long as it takes! Do not think for one minute you are alone because you are not.

Now, think good, strong, positive thoughts, be focused on what you need to do in order to get over this speedbump and let us know when you need something.

Michelle
 
C

Cruise cutie

Guest
Oh Kathy my hugs, and heartfelt prayers are with you and your DH.. please know that you will always be in them, and let us know what things are available for you, and have some faith they get a firm diagnosis and treatment plan to go with, and while I am so sorry it's been snarled up in a morass of mess, I do know one thing.

. The Good Lord up above seems to have a plan, and I never know what it is.. but I do seem to get the strength from somewhere's to deal with the crap that hits the fan in our lives, and for some reason I slog forward ,and cope.., not always happily either..but just DO..

and anger sure seems to crackle in it too. and you would not be human if you did not have a resentment in this..and you are *entitled* to be upset.. so please know I am here for you, and keep us in the loop.. hugs, and love, Joanne
 
Top