JacquieP
Staff Captain
It was a pretty good appointment and the doctor dealt with my questions even before I had a chance to ask them. Leon will be having a CT scan of his chest to check on the size of his Thymus gland, and will have an EEG to see if they can find anything which would contribute to his seizure. They want to do it with sleep deprivation which means he has to go to bed at midnight and get up at 5:00 am, with no naps during the day at all. You can imagine how that went over. He was put on one more medicine, Imuran, which tends to suppress the immune system, so we can see if that will stop his "can't breath well episodes". It's also used in combination with his current medicine to assist in treating the Myasthenia gravis. That really frightened me this morning and I really don't want it to happen again. It is a possibility that his diaphragm muscles could be affected, but normally that's not the case. I told the doc that Leon sounded like he was having an asthma attack, so it looks like a trip to the ENT doctor is in the near future. That means an appointment with the primary care doc to get a referral to the ENT specialist. What a vicious circle medicine has become! At any rate, we go back to see the good neurologist, Dr. Myers on August 18, because he wants to see how Leon does with the new medication combination and get all the test results. This is all a bitter pill to swallow for someone who has had very few medical issues other than his bypass 5 years ago and his gallbladder surgery last year. Thanks to everyone for your prayers and good thoughts!
