Leon's Neurology visit

[JacquieP]

He's having more "good" days than bad ones, but I was really worried Monday. His chest CT scan will be tomorrow, as they're looking to see if his Thymus gland is enlarged, as it often is in Myasthenia Gravis. The thymus is large and very active in childhood, because it tells the T-cell lymphocytes to go to the lymph nodes, but it shrinks as the body ages. Many patients with MG have surgery to remove it and it helps considerably if it has indeed become enlarged. He's having fewer side effects from the medicine and is now up to a full dosage regimen of the Mestinon, thank heavens. We'll see what happens next, but at least for now, he's in a better frame of mind.

 

[Lisa]

Good news, Jacquie! Hope the CT shows what is going on.

 

[Donna - dsw]

Hope all goes well for you both!

 

[Gramma Ann]

That's good news.

 

[bostongal]

Adding my {{hugs}} to the bunch - I too know how medical issues can take over your life. I hope the medication combo helps and they can figure it all out. I suffer from seizures and know how that issue alone can be frightening and difficult to treat. It does sound like you have a good neuro doc there. As for the sleep deprivation EEG I am with Leon on that one - I just refused to do one myself (got new meds instead). Hope when he does his it gives them some helpful information and that Leon doesn't feel too awful afterwards!

I am keeping you both in my thoughts and prayers - even when I am not here on the boards.

Meg